From the Executive Director: Transitioning From the 1115 Waiver Is Only a One-Digit Change

Suddenly it seems that the 1115 Waiver may no longer be the vehicle for change for New York State’s system of services for people with developmental disabilities.  Some may be tempted to think that we can enjoy a respite from the pervasive anxiety about our future. Nothing could be further from the truth. The fundamental [...]

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From the Executive Director: Let Us Know What Our Positions Mean to You

In November of last year, we launched the Where We Stand series on the NYSARC News Blog, an initiative of our Issues & Positions and Membership Committees. The series attempts to present our Organizational positions on key issues in a more understandable manner. Read it now: http://blog.nysarc.org/category/where-we-stand-our-issues-and-positions/ Our hope is that by presenting our positions on [...]

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Politics As It Happens: U.S. Supreme Court Hears “Obamacare” Case

For the first time in almost half a century, the Supreme Court held more than 6 hours of arguments over 3 days during the last week of March regarding various aspects of the Patient Protection and Affordable Care Act, commonly referred to as “Obamacare.” This landmark law contains numerous provisions that would impact people with intellectual and [...]

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From the Executive Director: Loss of a True Advocate

On March 12th,  Paul Nigra, the former executive director of our Fulton County Chapter, passed away.  Paul had been courageously fighting ALS (Lou Gehrig’s disease) for close to two years.  Collectively we feel a void and sadness. We, of course, extend our profound condolences to  his wife Barbara and his family.  Those condolences also go [...]

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Politics As It Happens: Governor Cuomo Announces Big Steps Towards Final Budget; PEF Rallies for Preservation of OPWDD Services

The Governor announced big steps taken along with the Legislature to begin to resolve what appear to be the major issues for this legislative session: pension reform and redistricting.  The Legislature and Governor still must draw new legislative districts.   However, the agreement on a constitutional amendment (the Redistricting Reform Act of 2012) is viewed as [...]

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Politics As It Happens: March is Statewide Family Advocacy Month, Family Advocacy Call-In Day on March 9

March is Statewide Family Advocacy Month, in  conjunction with CP of NYS and Alliance of Long Island Agencies DON’T LET THEM FORGET US!! March is the opportunity to visit or call your legislators and make it clear to them that the people we serve have acute, unmet needs.   Also, Friday, March 9th is Family Advocacy Call-In [...]

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Where We Stand: Autism

On a regular basis, NYSARC will present an important issue facing the field of intellectual and other developmental disabilities and explain the Organization’s position on the issue. For a complete and more detailed description of our Issues and Positions, please visit our Advocacy page and click on the “Read Our Position Statements” link. Autism and the full [...]

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Politics As It Happens: Boston PBS Interviews Danny Hakim

Boston PBS interviewed New York Times reporter Danny Hakim on his “Abused and Used” series dealing with services for people with developmental disabilities in New York State. “[After Willowbrook,] New York and other states emptied their warehouses, started group homes and companies grew to run them, taking in billions of dollars in state aid. Families of [...]

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